The cornerstone of developing a comprehensive approach to rare diseases in any country is the establishment of a clear policy and action plan. Dr. Dursun played a pivotal role as the editor of Turkey’s first Rare Disease Health Strategy Document and Action Plan.

Raising awareness of rare diseases is essential for any country. Dr. Dursun has made significant contributions to numerous events aimed at increasing awareness in Türkiye.

Rare Disease National Registry System Project

Türkiye is one of the rare countries that has a nationwide rare disease registry system

Dr. Dursun has played a key role in national rare disease screening programs, contributing at every stage—from kit production to piloting and implementation.

Project on Reimbursement Decision-Making Using the Health Technology Assessment Method in Rare Diseases

In this project, "Multi-Criteria Decision Analysis and Value-Based Payment Examples" were examined, leading to the preparation of a comprehensive report.

International Collaborations on Rare Diseases

Representing countries in international collaborations is vital for improving quality and outcomes. Dr. Dursun serves as a Turkish delegate in EJPR-D and ORPHANET, contributing to global efforts in rare disease research and management.

Establishing Specialized Health Services for Individuals with Rare Diseases

A crucial aspect of healthcare planning for individuals with rare diseases is the establishment of specialized services. Dr. Dursun has contributed to every step of the planning process for units such as SMA treatment centers and neuromuscular service units in Türkiye.

Planning the Implementation and Administration of New Technology and Orphan Drugs Nationwide

Dr. Dursun possesses expertise in facilitating access to new technology medicines in Türkiye and has made substantial efforts to overcome challenges in this field.

Member of the Rare Diseases Center of Excellence Commission